შეზღუდული შესაძლებლობა – ბარიერი, რომელსაც უნდა გავუმკლავდეთ
მარიამ ხითარიშვილი 27 48 93
sazogadoebis nawilisTvis SezRuduli SesaZleblobebis mqone pirebi is adamianebi arian, romelTac ar SeswevT damoukideblad cxovrebis Zala da mudmivad sxvisi daxmarebis imedad arian. amitom sociumSi SezRuduli SesaZleblobebis mqone pirebi iwveven TanagrZnobas, xandaxan – agresias, magram Tanasworobis gancdas – iSviaTad. realurad, SSm pirebs SeuZliaT konkurencia gauwion janmrTel adamianebs, Tundac SromiT saqmianobaSi. istoria icnobs cnobil, warmatebul, gansakuTrebuli bedisa da mniSvnelobis mqone pirovnebebs, romlebic miuxedavad maTi fizikuri Tu inteleqtualuri darRvevebisa, aqtiurad iyvnen CarTulni sazogadoebriv cxovrebaSi da gaakeTes sazogadoebisTvis imdeni, ramdenic bevrma `srulfasovanma~ adamianma ver SeZlo. magaliTisTvis Sors wasvla ar damWirdeba, radgan swored aseT adamianTa ricxvs miekuTvneba macaco xaWapuriZe, qarTveli gogona, romelic sruli usinaTlobisa da daqveiTebuli yurTasmenis miuxedavad, dasaqmebulia prestiJul dawesebulebaSi da sakmaod aqtiuria, rogorc realur cxovrebaSi, ise socialur qselSi.
macacos volframis sindromi aqvs, rac progresirebadi daavadebaa. mis upirveles gamovlinebas warmoadgens mcirewlovan asakSi ganviTarebuli Saqriani diabeti da mxedvelobis nervis atrofia. am sindromisTvis aseve damaxasiaTebelia uSaqro diabeti, smenis daqveiTeba mis srul dakargvamde da sxva. amJamad ar arsebobs efeqturi mkurnalobis meTodi, romelic SeaCerebs, Seanelebs an Seqcevads gaxdis am sindromis progresirebas. mxolod detalur klinikur monitoringsa da simptomur mkurnalobas SeuZlia Seamsubuqos daavadebis mimdinareoba.
macaco Tavis istorias gviambobs:
– 2 wlis da 6 Tvis viyavi, roca Saqriani diabeti damemarTa. miuxedavad dietebisa, bavSvoba Zalian kargad gavatare. arc baRSi, arc skolaSi Semqmnia problema. wamlebis gegmazomierad miRebam da kvebis saaTebma reJimSi cxovrebas mimaCvia. yovelTvis dieturad vikvebebodi, magram amas ar SevuzRudivar arc eqskursiebze, arc megobrebTan, dabadebis dReebze wasvlis mxriv da a.S. aseT dReebSi normis farglebSi deda yvelafers maWmevda da guliswyveta arasodes mqonia. pirvel klasSi mxedvelobis problema Semeqmna. 10 wlamde veraferi damidgines. miniSnavdnen sxvadasxva saTvales, romelic ubralod iorTqleboda da wera-kiTxva miWirda. miuxedavad imisa, rom maswavlebelma pirvel merxze damsva, dafasTan axlos mivdiodi da vgrZnobdi, ufro da ufro rogor uaresdeboda mdgomareoba. 10 wlis viyavi, roca saqarTveloSi Semoitanes aparati, romelic Tvalis nervis mdgomareobas xedavda. naxes, rom dawyebuli iyo nervis atrofia, igive dambla. deda da bebiebi yovelTvis gverdSi medgnen, mikiTxavdnen yvelafers, rac mWirdeboda da mec damaxsovrebas miveCvie. smeniTi maxsovroba imdenad gamiZlierda, maxsovs, universitetSic ki bebias iseT sagnebs vakiTxebdi, saerTod rom ar esmoda, meore dRes ki leqciaze Tavisuflad vyvebodi. leqtorebic mexmarebodnen, testebs zogjer isini mikiTxavdnen. dResdReobiT, miuxedavad imisa, rom xmovani programebi sagamocdo centrebSi itvirTeba usinaTloebisTvis, mainc arsebobs patara xarvezebi, ris gamoc maT qulebi akldebaT, – gviTxra macacom.
rogorc Tavad ambobs, 20 wlis iyo, roca mixvda, mxedvelobis gauaresebis gamo kompiuterTan damoukideblad muSaobas veRar axerxebda da bavSvobis megobars daukavSirda.
– Cemi megobaric usinaTloa. miuxedavad imisa, rom usinaTloTa skolaSi ar mivlia, vkiTxe, SevZlebdi Tu ara kompiuteruli xmovani programis Seswavlas. miTxra, rom es ar gamiWirdeboda da proeqtSi CamrTo, romliTac es programa Seviswavle. Tavidan Zalian merTuleboda, magram TandaTan daveufle. gavicani sxva usinaTloebic. 22 wlis asakSi damoukideblad veRar davdiodi. dadginda, rom uSaqro diabetic damemarTa da mxedvelobis problemam swrafi progresireba daiwyo. Zalian mindoda samsaxuris dawyeba, 2011 wlis dekemberSi vipove kidec vakansia, magram gulSi mecineboda – vfiqrobdi, usinaTlos vin daasaqmebs-meTqi. . . es iyo Semosavlebis samsaxuris vakansia specialurad SSm pirTaTvis. Cemma usinaTlo megobarma, ase vTqvaT, iZulebiT Semavsebina reziume, gaviare gasaubrebis etapebic da TebervalSi prevenciis departamentSi sagadasaxado monitoringis ganxriT davsaqmdi. samsaxuric Cems ubanSi – saburTaloze iyo da es xels miwyobda. 2012 wlis pirveli aprilidan ZalaSi Sevida sasaqonlo eleqtronuli zednadebi. gadamxdels kompiuterSi eleqtronulad unda Seevso yvelaferi. zepirad viswavle amis gakeTeba, raSic TanamSromlebi damexmarnen. gadamxdels telefoniT vuxsnidi (romelmac sul ar icoda Cemi SezRudvebis Sesaxeb) romel velSi ra da rogor unda Caewera. sakmaod bevri zari Semodida dRis ganmavlobaSi da aqtiurad vmuSaobdi. 2 weliwadSi zarebi gaiSviaTda da pasiurad yofna mombezrda. sammarTvelos ufross davelaparake da viTxove, rom saqme moematebinaT. amJamad TanamSromeli migzavnis brZanebebs, xmovani programis saSualebiT vakeTeb brZanebis reestrs vordis failiT da eqselis formatSi saWiro monacemebs vakopireb, – miTxra macacom.
smenis problemebi samsaxuris dawyebisTanave gamouvlinda, magram rogorc Tavad ambobs, maSin Semawuxebeli mdgomareoba ar yofila. . .
– samsaxuris dawyebidan smenis daqveiTebam sadRac 2 weliwadSi Semawuxa da dedas vTxove, eqimebTan waveyvane. miuxedavad imisa, rom usinaTlo var, smenis aparatebis SeZenisas aranairi SeRavaTi ar momeca. maSin me-2 xarisxis daqveiTeba mqonda, aparatebi ufasod ar mekuTvnoda, amitom viyide. Tavidan Zalian gamiWirda Segueba, magram esec gadavlaxe. 2017 wels Catarda xeljoxis mobiloba-orientaciis kursebi, sadac misi gamoyenebis teqnika Seviswavle. xeljoxis daxmarebiT samsaxurSi damoukideblad davdivar, 5-sarTuliani Senobis nebismier adgilze SemiZlia mivide, garemo ki sadac vcxovrobT, ar aris adaptirebuli ise, rogorc saWiroa. daqiravebuli myavs mZRoli, romelic diliT saxlSi makiTxavs, saRamos ki samsaxurSi. sariskoa, saxlamde Tundac avtobusiT rom viaro. bevri arakanonmorCili mZRoli gvyavs, SeiZleba wiTelze gamovardes. me ki ara, mxedvelobis mqoneebic ar arian daculi. . . amis gamo quCaSi damoukideblad ver davdivar. yvelaze komfortulad Tavs adaptirebul da nacnob adgilebSi vgrZnob – saxlSi, samsaxurSi, sadac yvela wertili vici. ucxo adamianTan urTierTobas ar vuSindebi. sruliad ucxo garemoSic rom aRmovCnde, Tavad vaswavli, rogor unda momexmaros. damxmare saSualebebi, samwuxarod, saqarTveloSi arastandartulia. xeljoxi, magaliTad, unda iyos simaRlis mixedviT, TeTri feris da a.S. msgavsi araferia gaTvaliswinebuli, – gviziarebs gulistkivils Cveni respondenti.
macaco saqarTvelos saxalxo damcvelis aparatSi gaeros SSm pirTa uflebebis dacvis konvenciis wevria. igi smenis armqone da usinaTlo pirTa saWiroebebze saxalxo damcvels rekomendaciebs warudgens. man 2017 wlis noemberSi daaarsa arasamTavrobo organizacia `volframis sindromi – saqarTvelo~.
– daavadeba sargeblobs iSviaTis statusiT da ar arsebobs specialuri jandacvis programa am sindromis mqone pirebisTvis. vicnob volframis sindromiT daavadebul pirebs, romlebic saqarTveloSi ar cxovroben. maTTan telefoniT vsaubrob, vici TiToeulis mdgomareoba da saWiroeba. aqaurebs, visac es sindromi aqvT, riTic SemiZlia, vexmarebi, vawodeb yvelanair informacias, rac am daavadebas exeba. es iqneba prevencia, Tavdacva avadmyofobis swrafi gauaresebisgan. davexmareT volframis sindromis mqone erT axalcixel biWs, romelsac narCeni mxedveloba aqvs. organizaciam daiqirava instruqtori da SevaswavleT xeljoxis gamoyeneba, romelic organizaciis saxeliT sakuTari xarjebiT da iniciativiT davufinanse. vicnob volframissindromian gorel gogonas, romelsac hyavs Svili. is 2 wlisaa, jerjerobiT araferi awuxebs, magram daavadeba SeiZleba 12 wlis asakSic gamouvlindes. SesaZloa Svils arc daemarTos, magram STamomavlobaSi gavrceldes. myavs megobrebi – volframis sindromiT daavadebuli biWebi, romelTac Svilebi hyavT, magram kacisTvis Svilis yola ufro martivia, qalisTvis ki ormagad safrTxis Semcvelia. endokrinologebi pirdapir gveubnebian, rom 50/50-zea sindromis STamomavlobaSi gamovlenis riski. zogi pirdapir gvicxadebs – ar daorsulde, Torem mokvdebi! ase mwaredac ar SeiZleba. . .
rogorc macacom aRniSna, adamianebs xmiT aRgviqvams. pirveli STabeWdileba xmiT da saubris maneriT uyalibdeba. macaco 32 wlisaa, Tumca aravin gamoCenila iseTi, visac cxovrebas daukavSirebda.
– myavs megobrebi, maT Soris biWebic, magram mxolod megobruli urTierToba maqvs. maTgan meti daintereseba rom wamosuliyo, Zalauneburad CemSic aRiZvreboda raRac grZnobebi, magram am etapisTvis amaze gancdebiT Tavs ar viwuxeb (icinis). dila iwyeba samsaxuriT, romelsac 6 saaTze vamTavreb. yovel saRamos megobrebTan erTad ver vatareb, radgan sakmaod viRlebi. zogierT Cems megobars Svilebi hyavs. Zalian miyvars bavSvebTan urTierToba, maTi monaxuleba, saCuqrebis mitana da vcdilob, SabaT-kviras mainc mivide. xandaxan isini modian CemTan. saxlSi yofnisas audiowignebis mosmeniT verTobi. Zalian miyvars kiTxva da xmovani programis daxmarebiTac vkiTxulob. Tu usinaTlo aqtiurobas moindomebs, bevri ram SeiZleba gamouvides.
volframis sindromi macacos dasac daemarTa, magram, rogorc TviTon gviTxra, mxolod mxedveloba dauqveiTda. maTi mSoblebi sruliad janmrTelebi arian. saqarTveloSi sul 3 ojaxia, sadac or dedmamiSvils aqvs volframis sindromi.
– Cemi da 23 wlisaa, masac Saqriani da uSaqro diabeti aqvs, aseve – narCeni mxedveloba. xandaxan ucxoeTSi yofnac uwevs da amaze guli ar mwydeba, is cotaTi mainc xedavs samyaros. me mxolod sinaTlis aRqma maqvs da sazRvargareT arasodes vyofilvar. mainc usinaTloa da rad undao – bevrisgan gamigonia da Zalian mwyenia. eqskursiebze yofnisas Zalian didi siamovneba mimiRia imiT, rom axal garemoSi movxvdi. Tu vinme mexmareba imiT, rom garemos kargad amiwers, am dros yvelafers SevigrZnob. erTxel martvilSi viyaviT da iseTi warmodgena mqonda, TiTqos yvelafers vxedavdi, roca davdiodi da kldovan niadags vgrZnobdi, roca xramSi viareT, patara kunZuli gadaviareT da fexebi damisvelda. . . roca martvilis kanionSi naviT gaviseirneT. . . es SegrZnebebi damigrovda da CemTvis Zalian sasiamovno da mniSvnelovani iyo. maqvs wonasworobis problemac. Tu zedized 3 dRe saxlSi Cavjeqi, Tavbru mexveva. amitom vcdilob, sul viaro. bevri viseirno, amaSi megobrebi mexmarebian. gasul wlebSi fitnesklubSic vvarjiSobdi. cota ukeTesi smena rom mqonda, TeatrebSic davdiodi. aparatebis gamocvlas vgegmav da Tu momewoneba, anu yvelafers Tu gavigoneb, isev vivli. imis SiSiT, rom cudad xar, SeiZleba viRacaze male waxvide – gardaicvalo, ar SeiZleba pasiurad ijde! unda gavixalisoT cxovreba, riTic SevZlebT! – gviTxra macacom.
albaT cxovreba specialurad gvaxvedrebs aseT adamianebs. . . isini Cveni cxovrebis ukeT warmarTvaSi gvexmarebian da stimuls gvaZleven. Tavisi arsebiT gvarwmuneben, rom SeuZlebeli araferia. . . da avtomaturad, ormagad gvaZliereben Cvenc. aravin icis, ras gvimzadebs momavali, aucileblad unda viyoT mzad yvelafrisTvis, magram ar viciT, ra dros rogor moviqceviT. aravis da arafris gamo unda vTqvaT uari Cvens survilebze! yvelani valdebulebi varT, bednierebi viyoT!
